Thank you for the support and prayers. There are other treatments however d/t the advanced CIDP they by passed several that most would start with. Stem cell I hear is an option. The Rituxan is a cancer drug that is not an approved treatment that my Mayo Clinic Neurologist suggested so my insurance refused to pay for even with supporting documentation from him. But the foundation at the pharmaceutical company is helping me get it. However, d/t the recent dx of Mediastinal Mass my local Neurologist stopped it until we figure out this mass and it’s treatment plan.
As for previous illnesses prior to CIDP, my immune system my who life was always kind weak. But when I got older in my 30’s I would get pneumonia once a year.
As for hereditary or not. There are 10 of us kids in my family. I’m the second youngest. My sister that had MM was 3rd youngest. Everyone else is healthy. Parents are in their mid 80’s and healthy. My sister with MM had a genetic Mutation but I don’t know what kind. I had her labs sent to my hematologist to review a year ago and don’t think he even looked at them.
Yes no cure for CIDP