@jtbt0406
First let me just say how sorry I am that you lost your sister. Very sad.

What @sunnyflower says is right on. This is a good place to sanity check what is going on with your illness, for example back when your doctor was minimizing your symptoms, if you'd talked about it here you'd have most likely been advised to get a different opinion. Doctors, like plumbers or financial advisers or any field you name, run the gamut from really good to really BAD. And the result of going to a bad doctor can be consequential, only instead of having a water issue or losing money, your actual life can be on the line.

There should have been no reason you had to wait for 9 years to get a proper diagnosis! What hell for you. You say you are holding off on the heavy duty pain killers until later. Are there any other treatments you know about for CIDP besides the IVIG infusions? I guess like neuropathy there is no cure for CIDP, correct? You mention cbd oil, that helps a lot of people for pain. I just hope and pray the IVIG continues to give you some relief. How long does that take in a given session? Earlier you mentioned they were 2 days every four weeks. So are you now going in 2 days every 2 weeks? It's great to get relief, but boy, it can sure be a hassle.

Curious, do you think there is a genetic/hereditary reason you developed this, or is there anything you can relate the cause of this to? Do you remember anything in your history prior to 2008 that foreshadowed this illness in some way?

I am glad you have posted here on Connect. And I look forward to following your progress from here out. My very best to you, Hank