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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Autoimmune Diseases | Last Active: May 2 12:23pm | Replies (261)Comment receiving replies
Hello txamo. It is wonderful news that your last bone scan was much improved. I too feel I don't have a choice about taking the medication since I've already fractured 3 pelvic, one rib and other smaller bones, spontaneously due to my daily Prednisone. Did you suffer any side-effects from Reclast? May I ask how much of an improvement you have? My recent scan showed I'm 13% worse in my spine and 14% worse in my hip since my 2018 scan. They said that anything more than a 2% change is "significant". My T-Score was -3.5, and I think -3.7 for spine and hip I believe. So scary! Warmest wishes, Sunnyflower
Replies to "Hello txamo. It is wonderful news that your last bone scan was much improved. I too..."
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@sunnyflower
It's always hard to get test results that aren't good, isn't it, Sunny? No matter how positive our thinking is, discouragement happens. I'm surely sorry that your bone scans revealed so much deterioration. Life is unpredictable in many ways. In the middle of uncertainty, having a firm foundation makes it possible to keep going, knowing that you have resources available through the indwelling Spirit of God, who gives us peace that's beyond our understanding. Blessings and peace be yours tonight, Sunny.
Jim