@txamo I wonder if you are taking bisphosphonates for your osteoporosis? Another Connect member, @sunnyflower has recently been struggling with whether to go back on them. They have caused her very significant pain in the past as a side effect but are supposed to make your bones less fragile I assume. I hope you do not have to take them.

One of the earlier posts in this discussion was interesting, where @sherlock says "I had 3 years of monthly treatments and didn't see improvement until after a year. I'm now in remission and just have pain associated with neuropathy. Diet is extremely important in controlling the symptoms. Eliminate sugar, dairy, gluten, red meat. Eat lots of greens, enjoy green smoothies, drink lots of water." Decided to pass this on in case you did not read it. Might be something to look into. But forgive me if this is something already obvious to you.

I truly hope something clicks for you. It's awful to live with such a condition. But you say you do have good people support in your life? If so, that is BIG. By the way, I have found that reading through historical posts from this forum can be very useful. Just put CIDP into the search window at the top of the page and start reading. Again, my very best to you. Hank