@txamo Hello. I've read your posts and cant bring myself to hit that little ♡ and "like" them. Simply because liking what you are saying just doesn't feel right. So, here I am wanting to let you know that I have deep fealt empathy for you and your chronic pain diagnoses. I'm very happy you received beneficial help with IVig for 5 years and were able to overcome being paralyzed. That is a miracle. It's time to brainstorm again however. I have small fiber polyneuropathy and tried lidocaine infusions for 5 months. Although they did not work for me, they do for some. Has your neurologist ever mentioned this treatment?

Ketamine infusions have greatly benefited some people. I recall a lady here on Connect being in a wheelchair and then being able to get out and walk with the help of Ketamine infusion. When I inquired about Ketamine with my neurologist I was told he does not provide the treatment nor does his affiliated medical college hospital, and that I'd have to pay out of pocket typically. I truly wish you the best of luck with forward progress and pain relief. - Rachel

PS: Wondering if you have ever been treated at Mayo Clinic?