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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Autoimmune Diseases | Last Active: 7 minutes ago | Replies (329)Comment receiving replies
I was on IVIG for five years. Twice I was paralyzed from head to toe with CIDP. For the last 15 months of indusions I did not see any change in strength or pain. I also tried plasmapheresis and steroid infusion. I am baseline now. Walking with a walker. I have severe pain in my spine.
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I have been asking my Neurogist Dr. for the plasmapheresis, but she doesn't want to prescribe it to me because it implies to be 10 days hospitalized. was that your case? did the plasmapheresis help you?
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@txamo
My friend I am so sorry to hear of your terrible condition of CIPD. Please accept my deep feelings of sorrow for your suffering. May I ask what has led you to explore ketamine? I remember seeing a video by a doctor describing some of the benefits of it. I thought I had a link saved but cannot find it. Can you describe whether the gabapentin helps and what side effects you have from it. Have you tried other meds for pain? It would be interesting to hear more about your history with your illness; the more you can flesh out the more likely it would be that someone here might come up with some useful tidbit that perhaps might be helpful to you. I really can't imagine what utter despair a disease like this can cause one. I hope you have some good support people in your life. Best, Hank