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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: Feb 11 11:30am | Replies (349)
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@txamo

I have a rare autoimmune neuromuscular disease that was diagnosed six years ago. Right now I am only treated with Gabapentin. I also have multiple fractures in my spine due to osteoporosis. I am in severe pain with the constant neuropathy and pain in my back. I have been treated by a pain clinic with many procedures and pain killers. My question is: has anyone ever been treated with ketamine for pain and if so,did it work?

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Replies to "I have a rare autoimmune neuromuscular disease that was diagnosed six years ago. Right now I..."
John, Volunteer Mentor | @johnbishop | Sep 28, 2020

Hello @txamo, Welcome to Mayo Clinic Connect. You will notice that we have moved your post to an existing discussion "CIDP (chronic inflammatory demylinating polyneuropathy)" so that you can meet other members with similar symptoms and learn what they have shared helps them. If you click the VIEW & REPLY button at the bottom of the email notification, it will take you to the discussion.

You may also be interested in the following related discussions:
- Ketamine for chronic pain: https://connect.mayoclinic.org/discussion/ketamine-for-chronic-pain/
- Ketamine Infusion: https://connect.mayoclinic.org/discussion/ketamine-infusion/

Have you been able to discuss ketamine as a possible treatment with your doctor or care team?

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hwysuper95 | @hwysuper95 | Jan 29 4:18pm

I have just started to get a vitamin and lidocaine IV and it helps with the nerve burn and pain. It lasts for about 10 days. I get them every 2 weeks. It is worth trying. I now have scheduled it every 10 days and will post an update in a couple weeks.

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