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denadet (@denadet)

Multiple autoimmune diseases

Autoimmune Diseases | Last Active: Nov 23, 2021 | Replies (76)

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@gingerw

@kidsmomof9 I have a few autoimmune-related conditions. It has made me a warrior as I navigate this journey! Mine include systemic lupus, fibromyalgia, a rare kidney disease, multiple myeloma, osteoarthritis.

Would you care to share your autoimmune conditions!
Ginger

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Replies to "@kidsmomof9 I have a few autoimmune-related conditions. It has made me a warrior as I navigate..."

Right now it is SLE, Antiphospholipid antibodies, Hashimotos, Sjogrens & Raynauds along with gastroparesis, bipolar disorder, GERD, Nutcracker Esophagus, Chronic Migraine and a history of PCOS and Wernicke's Encephalopathy. Three of our kids have type 1 diabetes and one daughter has RA. One daughter has PCOS and 2 of the kids have Hashimotos. Two of them had severe asthma when they were younger. The apparent dominant gene is also evident in nearsightedness (8/9] and color vision impairment. Such a fun experience to live in this cluster!

@kidsmomof9 Really just a question here. I have a systemic form of Autoimmune, Amyloidosis Gelsolin. Every tissue and fluid I have has been invaded by mutated proteins. I have been previously diagnosed with "Upon my first diagnosis, Sjogren's, I was advised that having just one auto immune disease is rare and to expect them to find more. Yes, they did. Primary Biliary Cholangitis, Hashimotos, Gastroparesis, Ulcerative Colitis, peripheral neuropathy GERD, arthritis. My eyes are too dry and I can rarely drive, lost my teeth to dry mouth." But my current diagnosis includes possible forms of Amyloidosis which shows all these symptoms, and now I have shingles as well. It makes me wonder if these systemic (impacts the whole bank of body tissues and fluids) are what you have, although it is quite rare. I can name a dystopia of every tissue from my toes to my cerebrum which is a result of Gelsolin. It is not violent, but the impact can be fatal, especially as it invades hearts, lungs, brain, pancreas, kidneys, liver, etc..

Autoimmune diseases are no fun. Dorothy

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