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amber3212 (@amber3212)

Chronic Fatigue Syndrome and Temporary Paralysis?

Just Want to Talk | Last Active: Feb 15, 2019 | Replies (5)

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@lisalucier

Hi, @amber3212 – I can understand you'd want to comprehend what is going on with you mom and figure out her symptoms, and get your momma back, as you mentioned. As you thought that a lot of her symptoms appear to match chronic fatigue syndrome – except the temporary paralysis – I'd like to invite @kellye5 and @plshelpmyfatigue @sita @elik @oregongirl @canadagal @jmmb into this conversation, as they may have some input for you.

I believe you mentioned a bit back that she was seeing a neurologist. What does he or she say about these temporary paralysis episodes?

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Replies to "Hi, @amber3212 - I can understand you'd want to comprehend what is going on with you..."

@amber3212 I will attach a link for great articles on new research on CFS. There is so much out there and I get lost in these articles. One always leads to another and so on. It is from Health Rising. I would recommend reading some of the ones that interest you. There is also one that is a series webinars on diagnostic info and such. Here is the link : https://www.healthrising.org/blog/2018/07/08/new-harvard-chronic-fatigue-syndrome-me-cfs-research-center-fulfills-crucial-need/
This is an excellent one, but I haven't had a chance to really go through it. : https://sable.madmimi.com/c/16005?id=3048475.10200.1.2f7f661f735babd5dcf5bc20ca2f41b6 It is the Bateman Horne Center
Hope this helps and I hope the links work…

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