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Lyme disease and neuropathy

Neuropathy | Last Active: Jul 24, 2023 | Replies (28)

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@johnbishop

Hello @aeg73, welcome to Connect. @ndttech @cwallen9 @carnes @basslakeview @sharonryanbless who have mentioned Lyme Disease may also have some input on your questions on a Lyme disease/neuropathy connection.

You might find the following video helpful -- What happens when you have a disease doctors can't diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
-- https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

Are you currently taking any medications for treatment?

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Replies to "Hello @aeg73, welcome to Connect. @ndttech @cwallen9 @carnes @basslakeview @sharonryanbless who have mentioned Lyme Disease may..."

Thanks John, I will check it out TED talk). I feel like some "thing" whether from Lyme or Epstein Barr or Frozen shoulder the latter two I got diagnosed with wreaked havoc on my whole body. I'll check out the Ted Talk and have a Lyme literate specialist appointment but not until end of July. Some MD's use that one test as the gold standard if it shows no bars that it's a definite no but it didn't test for other common co-infections either so I honestly don't know what to make of it. Lots of testing, lots of out of pocket/deductible payments, etc. -at this point with no major connections.