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@tdemaria,
I have Lyme disease and bilateral peripheral neuropathy.
Can you tell me what test you had to test for neuropathy?
I too had a negative test result from my initial test for Lyme.
Then I went to a Lyme Literate Doctor who initially diagnosed me with Lyme based on my symptoms. Then confirmed that diagnosis by sending my blood off to one of two testing companies that are not supported by the CDC and so were at liberty to show all the test results (I sent it to Igenex in Palo Alto, California). Mine came back with several positive markers of Lyme.
I had it restested a few years later and again showed several positive markers for Lyme.
I do not know for sure that my neuropathy was caused by the Lyme, it had started many year before, but based on symptoms I likely contracted Lyme when I was in my early teens.
I would suggest asking your PC Physician if he would send your blood out to Igenex and have it tested properly. Igenex has all the info on how to do it on their website.
I wish you the best of luck.
Carl
Replies to "@tdemaria, I have Lyme disease and bilateral peripheral neuropathy. Can you tell me what test you..."
These are symptoms of Lyme disease and possibly other tick borne diseases. See a Lyme specialist.
I have Lyme like and neuropathy symptoms, aches and intermittent pains muscle twitch/pulsations, neck pain, fatigue, brain fog, night sweats at times, low normal B level - before all this I was a seemingly healthy person although low energy struggles and occasional low D levels but not overweight or like I am at this point. My first western blot Qwest test showed negative for the 4 Lyme disease/coinfections they listed most of which I had never heard of. I don't know if it warrants a further test from Igenex- getting mixed info on that but like others on here would just like to see if antibiotics changes anything. This has made a major impact on my mental well being and my husband has to carry a bigger load for the two of us due to my limitations. Any insight is appreciated.
@cbrackle Was your first initial test a Western blot? Mine came back negative so I'm torn on spending the money on Igenex or German lab, getting mixed thoughts on that. I hope your are able to fight your chronic lyme with some positive outcomes/changes. Kindly, Amy
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I have Lyme disease and blood testing was done by I Gene x. My Lyme doc and neurologist believe that my cidp and neuropathy are the result of chronic Lyme. I wouldn't have surgery until you rule out Lyme. For that you'll need to find a Lyme specialist. Your Pcp should at least give you a month if antibiotics. Good luck.