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Gluten-free diet: What has worked? Your tips

Digestive Health | Last Active: Nov 24, 2022 | Replies (120)

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@airey2

It took a long time to figure out as other things were going on at the same time. When I was 17, I had a severe stomachache in school and had to go home. SInce it happened about an hour after breakfast, we all thought it was breakfast that had bothered me, and I had eaten egg and a waffle. When I was a college freshman I ate some pancakes that were yellow with egg, and the attack that I got about an hour later was so severe that I ended up in the campus hospital. (dizzy, nothing was staying down or staying in me, etc).
That was the worst attack I've had, but I have had multiple run-ins with eggy items (but eggy items always have gluten).
Ten years after that, I ate something with soy sauce and got sick (diarrhea only). I now know that soy sauce has gluten.
Fast forward 20 yrs later and oats started bothering me, I was diagnosed with endometriosis which is a female disease and told to go gluten free (without celiac testing). After 2 years gluten free and for the first time, finding out about celiac, I got curious and wanted to be tested, not knowing I had to be on gluten for an accurate result. However, I did test positive 2 out 3 areas (genes and bloodline).
My dr had told me he had noticed the Irish tend to get it more, and I do have Irish in me. Two years after that test, I decided I wanted to know for sure, and with dr approval went back on gluten, but could only stand it 3 days. So while I will never know for sure if I'm celiac, I have so many things against me including all those reactions as a young adult to what I now know was gluten. I've eaten lots of eggy items since gluten free, and have had no reactions.

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Replies to "It took a long time to figure out as other things were going on at the..."

It seems like doing "gluten-free" is something Docs tell people to do when they don't know what else to do. Whether it's celiac or not, sounds like you definitely are gluten intolerant, so at least you know how to help yourself! (it sounds like your test did indicate celiac though). Hope things continue to go well!