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Superficial Siderosis

Brain & Nervous System | Last Active: Nov 27, 2021 | Replies (47)

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@lisalucier

Hi, @staffordpark - wondering how you are doing and how your iron chelation therapy has been going? How are things with your balance?

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Replies to "Hi, @staffordpark - wondering how you are doing and how your iron chelation therapy has been..."

Hi @lisalucier , I’m going ok on the chelation. I’m struggling a little bit at the moment with my iron levels being too low. I’ve been anaemic for a while because of the chelation, but now it’s getting just that bit too low. So I’m trying to eat lots of steak and spinach to boost it up, as otherwise I need to cut back on the medication which I don’t want to do. Balance is ok, I still struggle and my neuro can pick up on it, but to an untrained eye you would struggle to see it. Vestibular rehab and pilatesmade a huge difference in helping regain my balance