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Superficial Siderosis

Brain & Nervous System | Last Active: Nov 27, 2021 | Replies (47)

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@staffordpark

Hi @lisalucier , it’s early days really so hard to tell. On mri there has been no improvement, but no worse so that is good. I have had a visual evoked potentials test before starting chelation and after 6 months and that has improved dramatically. I have just been approved for funding for a second year of chelation, so the hospital must believe it’s worth pursuing. I’m hopeful there will be a visual improvement on mri after the second year

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Replies to "Hi @lisalucier , it’s early days really so hard to tell. On mri there has been..."

Hi, @staffordpark - wondering how you are doing and how your iron chelation therapy has been going? How are things with your balance?

I have SS also. I was wondering how did you get approved for funding?