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Superficial Siderosis

Brain & Nervous System | Last Active: Nov 27, 2021 | Replies (47)

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@alwaysgail

I am still hoping to hear from someone who is familiar with this disease. Alwaysgail

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Replies to "I am still hoping to hear from someone who is familiar with this disease. Alwaysgail"

Hello, @alwaysgail - our moderation team too, hopes to attract more members who are familiar with superficial siderosis. We will be working on this. We'd love to connect you.

In the meantime, I'd love for you to meet @hopeful33250 @johnbishop @jenniferhunter, who have familiarity with neurologic conditions.

You mentioned that PT and assisted devices were recommended for you. How is the PT going? Are you finding it helpful?

I have SS