Hi, @alwaysgail – welcome to Mayo Clinic Connect. Understandable you'd like to find others familiar with your disease.

This information is from Mayo Clinic's medical professionals hub and is written for medical professionals, but I wanted to share this article with you on superficial siderosis https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/success-with-treating-some-superficial-siderosis-cases/mac-20431187

I'd like to introduce you to some members who participate in the Brain & Nervous System group on Mayo Clinic Connect @jakedduck1 @kariulrich @dawn_giacabazi @hopeful33250 @johnhans.

Wondering what types of symptoms you've been experiencing from this condition, @alwaysgail?