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Hypogammaglobulinemia

Autoimmune Diseases | Last Active: Jul 22 7:40am | Replies (79)

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@becsbuddy

Good morning @autumn12575 . You do sound like you’re on a merry-go-round going nowhere! All the different symptoms and odd occurrences but no answers. My sister and I went thru the same things as you. My sister finally went to Univ of Michigan and was diagnosed with an autoimmune disease. She really liked her care at U of M. I, finally, went to U of Colorado and have been happy with my care. You mentioned that you were thinking of U of Michigan. I say, go for it! But, first, do your homework. Write down the issues that bother you the most, how long you’ve had the symptoms, and the doctors you have seen. And go with an open mind. Take a friend or family member with you—to take notes and to be extra ears
Does this sound reasonable? Can you do this and then let me know what happens?

You might want to read this discussion also:
https://connect.mayoclinic.org/discussion/tips-for-getting-a-proper-diagnosis-of-an-autoimmune-disease/

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Replies to "Good morning @autumn12575 . You do sound like you’re on a merry-go-round going nowhere! All the..."

Hi, I’ve been to U of M before a couple times for myself for some issues. I’ve also been there many times with my dad for the issues he had. I know how they work. I have a lot of things wrote down already which is what brought all these blood tests in the first place. So now I’m just waiting. I don’t even know what my next move would be!