← Return to Hypogammaglobulinemia

Discussion

Hypogammaglobulinemia

Autoimmune Diseases | Last Active: Jul 22 7:40am | Replies (79)

Comment receiving replies
@ldestella

Hey-
Can u maybe give us a past medical history of any pertinent virus or infections in the past or medicines of significant purposes? I know exactly how I got mine, amongst other major illnesses, n it’s from some wicked medicines I took. That would make my gammaglobulemia aka CVID secondary...I was a RN n have a MPH pre-illnesses ie ME/CFS, fibro, 6 sets steel

Jump to this post


Replies to "Hey- Can u maybe give us a past medical history of any pertinent virus or infections..."

I know u said that you was an RN in an earlier post. I honestly don’t know what medicine would matter. I wish I could give you these answers I really do. I was completely blind sided when they called to tell me I had a blood disorder that was an autoimmune disease & gave me the name. That is the only thing I’ve been told other than seeing a cancer/hematologist doc who has not told me anything other than he was checking me for the multiple melanoma. I’m not sure I’ve had any one thing specific other than the terrible pneumonia I had twice in one year. Second time hospitalized me badly (which I believe I explained in a different post). I have no idea where any of this has come from. I don’t know what exactly you want me to say. In the last 5 yrs I’ve had a lot of issues with healing. It takes me forever to heal from anything. I slid & scrapped my knee on pavement in the early summer months & that is not completely healed right. If I get cut or burned it takes forever to heal now. When that didn’t happen when I was younger. I’ve had a salt taste in my mouth on & off for over 4 yrs now that’s so bad it burns my lips & still cannot get an explanation for it. I’ve been on steroids a lot for my breathing issues often about 4-6 times in a year. Yet my lung test is normal they say as well as the X-ray. I’ve battled with constant sinus infections about every month to 2 months for the last 4 yrs or longer always being put on antibiotics. My ears hurt with pressure everyday, slight ringing & lymph-nodes are rock hard just under my ears. Had a terrible bout of vertigo & never been the same since. I have terrible balance. I do not sleep good, my eyes have started doing weird things like darting, I have a terrible problem with heat intolerance & cold but the heat is way worse. My cheeks turn red & my ears and I get hot without knowing why (not blood pressure). I sweat from my torso something bad. My head will have sweat just dripping off it. Doesn’t matter if winter or summer. Although summer is worse. (Winter here is very cold) I’ve had constant infections in one side or the other of my bottom back teeth. Bronchitis about 3-4 times a year from about age 16-17 until about age 40. I haven’t had that as much recently. I had a lumbar fusion that never healed right internally with the bone they used off my hip twice that has happened in same spot. Need another surgery but won’t do it. Recent MRI showed white matter that had changed from the year before. I really wish I knew what specific ur looking for. There is a lot more issues I’ve had that I can’t remember off the top of my head right now that’s been on going for years without answers. I know my mother told me when I was little I was sick a lot. I had a lot of high fevers as a child without a cause so they would say it was just viral.