Hello,
I am happy to share what I know so far. I feel alright really other than I’m tired a lot. I’ve had these strange symptoms on & off over the last few years that each specialist can’t really tell me the cause for but I’ve just kind of kept looking for answers myself. What brought on expanding testing was actually me pushing my neurologist that I see for my problems w/neck & back after surgeries I’ve had to both area (auto accident 2011). She ordered an MRI of my brain cause of numbness I was getting in my face/ear that would come & go. It showed I had white matter so I started researching the possible causes of it after I seen the results of the MRI. I noticed I had a lot of similar symptoms as someone with MS.
She called me to tell me the results and said that it was probably not MS and that it was from migraines however I have headaches I don’t actually have full on migraines and it bothered me for the doctor to say “probably not”. I talk to her a little more about it and told her I wanted further testing done to rule out whether it was MS or not. So she tested me for lupus & all kinds of stuff & that is what has led me to here. One of the tests I had came back with this diagnoses. I have no idea what else is gonna come next but I will find out more tomorrow when I see a hematologist.