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Hypogammaglobulinemia

Autoimmune Diseases | Last Active: Jul 22 7:40am | Replies (79)

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@erikas

@autumn12575 Welcome to Mayo Clinic Connect, a place to give and get support.

I see you found this discussion and you have been able to read the past comments.

You were just diagnosed with hypogammaglobulinemia and you are concerned. Members like @goddard @hopeful33250 @johnbishop have discussed this topic and may have additional help for you.

May I ask what next steps are for your treatment? Is seeing a nutritionist common for this illness?

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Replies to "@autumn12575 Welcome to Mayo Clinic Connect, a place to give and get support. I see you..."

I am seeing a hematologist Feb 11th. I’m really hoping for answers to all of this. I don’t anything about it other than information I have read & there is a lot of different information so I really don’t know what of it pertains to me and my circumstance. I was very shocked to hear all of it and the more I read the more I get confused about some of it. I’m trying to understand what everything is for infusion stuff I’ve read in this thread & the different types of this disease but honestly it’s very confusing. I don’t even know why I would see a nutritionist. I am thankful I did find this group because it has helped me to see that this stuff is serious. I just wish I had more answers right now. I truly hate the guessing or waiting to get answers.