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sassykitten93 (@sassykitten93)

Hypogammaglobulinemia

Autoimmune Diseases | Last Active: Apr 5 2:34pm | Replies (56)

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@janetinman

I also have an immune deficiency currently labeled CVID but more likely Hyper IgM. Getting right tests is hard. Recommend anyone with Immune deficiency contact Immune Deficiency Foundation (IDF). Lots of excellent, free information, conventions. For second opinion in North Florida, try Dr. S. Joshi. My total IgG just dropped low enough for insurance coverage. Hoping treatment will reduce frequency and severity of infections. Have 2 types of arthritis and two types of cancer. Not giving up.

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Replies to "I also have an immune deficiency currently labeled CVID but more likely Hyper IgM. Getting right..."

Hello @janetinman — Welcome to Connect. Thank you for sharing the helpful information in your post. I thought I would provide the link to the Immune Deficiency Foundation's website – https://primaryimmune.org/ so that other members can take advantage of the information.

Do you mind sharing a little more about your treatment and let us know if it helps?

Hello @janetinman and @luckydog,

It has been a while since you last posted about your immune deficiency and hypogammaglobulinemia. How are you both doing?

Have you obtained any treatments or found a specialist that you can work with?

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