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sassykitten93 (@sassykitten93)

Hypogammaglobulinemia

Autoimmune Diseases | Last Active: Apr 5, 2021 | Replies (56)

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@kanaazpereira

Hi @sassykitten93,

I’m tagging @dougmann and @miche as they’ve written about hypogammaglobulinemia in other discussions on Connect. Since CVID or common variable immunodeficiency could be a probable cause, I’m also tagging @ldestella @xfirerose @cbdonlon; I hope they will join in and have some more information for you. Have you already been seen by immunology? I’d really like to hear back from you.

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Replies to "Hi @sassykitten93, I’m tagging @dougmann and @miche as they’ve written about hypogammaglobulinemia in other discussions on..."

@kananab thank you for replying. I am currently being assessed at UCLA for a MAC infection of the lungs. They are also going to start treating me for my CVID. They think I may have more things going on in my lungs besides the MAC. I also have Bronchiectasis. They want to change me from IVIG to SCIG. We are having problems with that because there is a blood shortage. I am waiting for tests. I am having a hard time producing a sputum sample. Finally somewhere to find out more about CVID.

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