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sassykitten93 (@sassykitten93)

Hypogammaglobulinemia

Autoimmune Diseases | Last Active: Apr 5, 2021 | Replies (56)

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@johnbishop

Hello @sassykitten93, welcome to Mayo Clinic Connect. One of the tools I use to find medical research type information is Google Scholar (https://scholar.google.com/). I did a search for hypogammaglobulinemia and then selected since 2018 in the left column to see all of the articles it finds. Here's the link to the list of articles found:

https://scholar.google.com/scholar?as_vis=1&q=hypogammaglobulinemia&hl=en&as_sdt=1,24&as_ylo=2018

Mayo Clinic also has some research information I found here:
Hypogammaglobulinemia in newly diagnosed chronic lymphocytic leukemia: Natural history, clinical correlates, and outcomes
https://mayoclinic.pure.elsevier.com/en/publications/hypogammaglobulinemia-in-newly-diagnosed-chronic-lymphocytic-leuk

Have you been diagnosed with hypogammaglobulinemia (Primary immunodeficiency)?

Mayo Clinic – Primary immunodeficiency
https://www.mayoclinic.org/diseases-conditions/primary-immunodeficiency/diagnosis-treatment/drc-20376910

Hope this helps.

John

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Replies to "Hello @sassykitten93, welcome to Mayo Clinic Connect. One of the tools I use to find medical..."

@johnbishop thank you so very much this is a great start

Thank You John for posting the information you found.

I’ve was diagnosed with Hypogammaglobinemia in 2010.
IVIG is truly a life saver. I would be interested in knowing mortality rates.
No one wants to give you an ETA. The cost for each treatment is absolutely phenomenal.
Thank goodness/GOD for great insurance coverage.

Any suggestions for a better quality of life would be appreciated.

In Jesus Name,

Glammie💫🌟😊

I also have an immune deficiency currently labeled CVID but more likely Hyper IgM. Getting right tests is hard. Recommend anyone with Immune deficiency contact Immune Deficiency Foundation (IDF). Lots of excellent, free information, conventions. For second opinion in North Florida, try Dr. S. Joshi. My total IgG just dropped low enough for insurance coverage. Hoping treatment will reduce frequency and severity of infections. Have 2 types of arthritis and two types of cancer. Not giving up.

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