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DiscussionNew to Mayo: MEN1 with duodenum NET G1
Neuroendocrine Tumors (NETs) | Last Active: Oct 8, 2021 | Replies (15)Comment receiving replies
Replies to "I, too, was told after 10 years I could relax. But in year 10, my gastroenterologist..."
Hello @mgreene
At this point the pancreatic cysts appear to be harmless, but given my history they are watched with an MRI periodically. The bone pain may be related to osteopenia or low bone mass. Each person's experience is different. Is your doctor a NET. specialist? Try to take care of yourself, ask your doctor questions and get second opinions if you need to, but try not to read too much into the experiences of others.
If you have any other questions, please let me know.