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Multifocal Adenocarcinoma of the lung, continual recurrences

Lung Cancer | Last Active: 1 day ago | Replies (437)
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@meka

Wow, thanks for sharing again. Read some of the articles and now I'm wondering what are the questions that need to be addressed. Is this out-patient, follow up, after affects, what if recurrence, even more impossible for any future treatments.????
Been doing so good with my mental health issues and I have a real sinking feeling right now.
Also how do you explain any of this to others, hard enough getting anyone to understand the nature of the disease to start with.

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Replies to "Wow, thanks for sharing again. Read some of the articles and now I'm wondering what are..."
shortshot80 | @shortshot80 | Mar 14, 2020

Nancy (shorthshot) You do not need to explain anything to anyone if you don't want to. The battle you are in is bad enough to handle, without trying to explaining anything. I have two kinds of lung cancer... Not fun.. Drain one lung, and then try to stop the bleeding of the other one is stressful enough on one's sickie . Besides Most of the time no one cares what is going on with your illness. At least thats how I feel, Maybe it's my age. I will be 87 next week. Nancy

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Merry, Alumni Mentor | @merpreb | Mar 15, 2020

@meka, @sakota9, @linda10, @bluelagoon- Hello! It warms my heart that we are all together here! It must be a Mayo meet-up for sure. lol
My next CT scan won't be until mid-June. I'm hoping to be in Rochester in early June for the mentor meet-up but because of the virus, I will have to wait and see. You all sound upbeat. I'm in self-isolation. RI now has 20 cases of COVID-19 and within 30 minutes of me!
I found my SBRT a breeze compare to surgery but the recovery time is about 6 months for me. I really had to take it easy- nothing strenuous. But that might be because I have so much lung tissue damage.
Linda was the recovery from SBRT difficult for you? I was some tired!

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Merry, Alumni Mentor | @merpreb | Mar 15, 2020

@meka What are you telling your family and friends about your illness? How are you explaining to them that it is a chronic type of cancer?

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