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How do you manage daily life with IBS-D?

Digestive Health | Last Active: Oct 30, 2022 | Replies (182)

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@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Replies to "Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for..."

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
- Cauda equina http://mayocl.in/2aWudfX
- Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

Block up and diarrhea, extremes. What meds are you taking? Could be the problem. I've found the use of a probiotic on a regular basis solved my problem!

Thank you....I will certainly look into that

Thank you. What medication did your doctor give you when you had diarrhea after eating the first meal of the day as I have that trouble also. You said it helped you.....

No. I had a colonoscopy and checked inside my stomach and said it was somewhat inflamed.but ok..I never got to see the doctor who ordered it afterwards, but the doctor I saw just gave me a list of food I should and shouldn't eat...Actually, that doesn't seem to make much difference..It seems to be more when I eat than what altho I do watch certain foods. The other day when I had been having bouts for a couple days, I drank their medicated bulk drink twice, ate nothing but rice, bread and applesauce, decaf tea with honey. I got up the next morning and had two sips of the cold tea and within 10 minutes I had diarrhea all over the bed, the floor and my wheelchair. I was devastated.

Hi @falconfly,

Welcome to Connect, and thank you so much for sharing the information.
Have your doctors explained what is causing the diarrhea? Are there any other symptoms (common to IBS) that you experience?

Hi...I haven't been diagnosed with IBS, but reading everyone's posts, it sounds like what I have. The prescription that helps me more than anything for diarrhea is diphen/atrop generic for Lomotil 2.5 mg...I has saved me more times than I can count..

Good morning to all. I did see my new doctor and they listened, asked questions and seemed sincere. A endoscopy and colonoscopy is scheduled for the 23rd. They are also scheduling a test wherein i swallow a radioactive "pill". This should take about 4 hours. SO I Feel content that something is moving other than my bowels. I will keep you updated. You have all been tremendously helpful and supportive. Thanks to all.

Sure understand your anxiety and feeling "down", as that is a long time to wait when having pain and all the other issues you are experiencing. Would the gastro doctor possibly have a 'call list' you could be put on to get in sooner if another patient cancels and there'd be an appointment opening. I've put myself on a call list quite a few times and had good luck getting in for an appointment sooner. And, GOOD FOR YOU, in requesting another doctor when you weren't comfortable with the one first found for you!! So important to have doctors we can relate to and are understanding of our health issues.