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Tips for managing chronic Small Bowel Obstructions

Digestive Health | Last Active: Sep 27, 2021 | Replies (88)

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@grammiec

Hi, I just came across your post and it is identical to what is going on with me. I just had my 6th SBO/w hospital stay and NG tube. This last one told me it had to do with adhesions, not the 2 hernia's I also have from previous surgery. If you find out how to prevent them, let me know and vice versa. We are looking at Mayo and Cleveland Clinic for possible surgery to fix the hernia's (one could possibly make me have a colostomy bag the rest of my life since it is at the site of a temporary colostomy) and remove the scar tissue/adhesions to see if this helps. I am tired of living life like this - afraid another SBO is around the corner if I eat something decent.

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Replies to "Hi, I just came across your post and it is identical to what is going on..."

Hi! I am so sorry that you are dealing with this as well. It is not fun. I've had two open bowel resections with removal of adhesions. My last surgery was in June of 2018. They spent 6 hrs removing every adhesion they could find. I have had 7 SBO's since that surgery. I have seen 2 GI docs, a motility specialist, and 4 surgeons. All of them have told me that surgery to remove the adhesions will only make the problem worse because it will simply cause more adhesions to form. I will be traveling to Mayo in a couple of months to see a battery of specialists there who, I am hoping, will help me figure out how to live with the condition I have and hopefully prevent more surgery. Ask lots of questions! And fight for yourself and your care! I have had to push to get as far as I have and I WORK in the medical field. Good luck and keep us posted.