Pneumatosis Cystoides Intestinalis

Hi @pamm and welcome to Connect. You may have noticed I changed the title of this thread to "Pneumatosis Cystoides Intestinalis" in order to make it easier for others searching for this condition to join in on the conversation.

According to an article in the World Journal of Gastroenterology, Pneumatosis Cystoides Intestinalis is defined as "a rare disease characterized by the presence of gaseous cysts containing nitrogen, hydrogen and carbon dioxide[1] in the intestinal wall that may be iatrogenic[2-5] or associated with a wide variety of conditions" - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3235639/

To my understanding of that definition it means that gaseous cysts are found in intestinal wall. As for causes, the exact cause isn't known, but the articles references that "it may appear in association with ileal surgery, colonoscopies, chronic pulmonary disease, connective tissue disorders and ingestion of sorbitol or lactulose."

I hope this information and article is helpful. Is this a condition that you or someone you know has been recently diagnosed with?

Thank you Mr. McConkey, for all of your help. Yes , I have been diagnosed with this. Although I have never been told anything about it. It was diagnosed during a colonoscopy. They removed close to 20 gaseous cysts. When the hospital in Phoenix sent them for a biopsy, they did not know what the were. This hospital then sent them to the Mayo Clinic in Scottsdale AZ, where they were diagnosed as pneumatosis cystosis intestinalis. After that nothing more has been said. Do you know if they can reoccur, or if they are dangerous in any way? Thank you for responding lt means a lot to me. Sincerely, Pam

Wish I had some insight into the Phoenix physicians, I am familiar with Rochester only. This link may help you: https://www.mayoclinic.org/appointments/find-a-doctor

Hi @pamm,

MayI ask if you could share more details? Do you need a gastroenterologist? Are you able to describe the condition or symptoms?

Good morning. Can you tell me please if anyone knows of a very good Physician in Phoenix or surrounding areas who would like to provide care and treatment to a patient who has quite a few health problems. I'm thinking the Physician in need would be a DO, however I'm not sure. If anyone has a recommendation, I will be extremely grateful.

Hi @pamm,

You may notice that I merged some of your messages about PCI so that it will make it easier for members to connect with you and share more information.

I couldn’t find any posts or discussions directly related to Pneumatosis Cystoides Intestinalis PCI, but I’d like to invite members who’ve discussed other digestive conditions. I’m tagging @ssams @jessicalatessa @kdh1 @playsdixie @elsinann @lynnkay1956 @janetpomponio @brightcloud @npkara @sakota @degarden_girl @axels; while they may not share the same condition as you, they may have some relevant information.

I also found this recent study that might interest you
"Successful treatment of pneumatosis intestinalis with associated pneumoperitoneum and ileus with hyperbaric oxygen therapy” https://casereports.bmj.com/content/2017/bcr-2017-219209.full

@pamm, could you share a bit more? Did you have symptoms when you were diagnosed? Was the colonoscopy part of a routine check-up?