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I have ET in my left hand and take Propranolol. I agree it is worse when stressed, fatigued, and at extreme temps. Has anyone else experienced a change in their vocal cords related to this? It’s like I lose my voice on certain sounds and at certain tones. I asked my doctor if the ET could be related to overuse of my hands with hand-stitching or computer use. She said there haven’t been studies related to this issue. I feel like it is more than coincidence that it is my dominant hand that is affected. I am also of European descent, but don’t know of a familial connection to this disorder.
Replies to "I have ET in my left hand and take Propranolol. I agree it is worse when..."
@kathystl - I too have ET and it affects my left hand. Being left handed and also very ambidextrous as a carpenter that came in very helpful.
I was diagnosed just over 28 years ago and just recently have retired. I always wondered if this was a result from heavy use of my hands. I have never taking any medication for it, but would be very interested in your feedback of taking Propranolol? What is the dosage you take and have you had good results? How about any bad side effects? The worst thing I encounter is trying to write. If I'm stressed or been physically active I really can hardly write. In the morning I have the best luck. I have no issues using a keyboard. I too are of European descent and I have looked into any familial connections and have found none with this disorder. I look forward hearing back from you regarding your experiences with Propranolol.
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Hi Kathystl, your parents could be a carrier and not effected. I have 10 aunts and uncles and most have dystonia, but three do not...but carry the defective gene.My doctor in Jacksonville, FL, the guru of Dystonia, said mine was 100% GENETIC, and I agree with him.