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@bjh369

I thought I had mine figured out but the MRI showed a new glioblastoma is trying to form in the same area that the old one was cut out of:( Now I have to decide if I want to pursue a trial or go back on high does maintenance of temozolomide to maybe get a few more months of life.
That's hard because a trial is just a trial and you don't know what you'll get or what side effects it will produce........I have to let my doctor know by next Thursday....oh my:(

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Replies to "I thought I had mine figured out but the MRI showed a new glioblastoma is trying..."

That is a tough choice. Whatever you decide, it must be what is comfortable fro you. What does this new trial offer? Yes you could be one who gets the new medicine, or one who does not.Does the new medicine offer to completely remove the glioblastoma If you didn't get the medicine, can you easily go back on the high dose of temozolomide? Whatever you decide, keep on posting here and know you are in my thoughts and prayers.