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@merpreb

@bjh369- Do you stop the temozolomide in between sessions of treatments? Am I mistaken that you said that you would have to take it for life?

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Replies to "@bjh369- Do you stop the temozolomide in between sessions of treatments? Am I mistaken that you..."

Well right now I'm waiting on appointments with Mayo Clinic to get started with double temozolomide for 5 days then off for 3 weeks and when I start that regimen I understand that if my body can tolerate it I will remain on that regimen. If my body can't tolerate it then I may be gone sooner than I'd like. Doc is also going to have me try the Optune device by the end of February 2019. It may give me a couple more years on planet earth. Hopefully I will know more about all this after my appointment on January 25th.