Welcome @odikaflog to Mayo Connect. When I wrote "we" I was trying to include everyone, but of course we all make our own decisions that hopefully work for "ourselves".
I am not familiar with ACC. I know that it is rare so information isn't that readily available. How are you feeling? You sound like you have a science back ground. Am I right?
I think the answer to "how do I spend my time more wisely so that I can get the most out of life" lies in thinking about what would please you the most? If you could look back and change something that you did or didn't do with your time now, what would it be, what would you do? What would make you the happiest, the most peaceful, the most stimulated and rewarding?
I am very glad that you are spending time wisely in research to see what will help you live the longest. My multifocal adenocarcinoma of the lung has taken up many 21 years of my life, almost 22 years. There is a lot of new data about it but the more they find out the more they become confused! Since I have participated in every kind of science study that I know of to help with this cancer I figured that sharing my experiences would both please me the most and help others. This led to my being a Mentor on Connect.
I hope that your research leads you to a long path in your journey. What is your present care?