Hello Everyone....this is my first time on this site for C Diff. I post on the heart rhythm site for A Fib and the site for Sleep Apnea. I feel like I am falling apart!
I was diagnosed with C Diff four days ago and started on Vancomycin four times a day. I had a tooth pulled a month ago and was given Clindamycin. Lo and behold...look what happened. I thought once I took this antibiotic, I would be healed. It is so depressing to read and think that I am going to have relapse after relapse.
My question right now is: How do you tell the difference between the cramps you get as a side effect from the Vancomycin and the cramps you get from the C Diff? They are dull and painful and seem to come in waves. Curiously, when I lie down and go to sleep at night, I am fine and when I stand up I am fine. I researched what I can take for pain and keep reading to stay away from the NSAIDS. What do you do for pain?
Also, how do you know when you are healed? I have IBS also, and the symptoms are kind of the same. My GI at Mayo said I won't be retested because I will always be positive for C Diff. How do I know when I am just in an IBS flare?
Does anyone have any success stories about being cured with no relapse. That would really help me mentally.
Thank you for any thoughts and input. My other group members have always been so supportive and helpful.
Blessings....CeCe 55
I think they should take Clindamycin off the market. That's how I also ended up with C-diff after taking it for my third sinus infection. If Vancomycin doesn't work for you, please ask your doctor for Difficid. I know it's expensive but it's the med that worked for me after my 4th bout of C-diff in 2018. I've never been told that I will always test positive for C-diff. And be sure to start taking Florastor. My GI had me take it and it's a great probiotic for people who have or had C-diff or IBS. My heart goes out to you.