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What happens after C.Difficile?

Digestive Health | Last Active: Oct 27, 2023 | Replies (165)

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@losthope

@I am also in treatment for cdiff due to clindamycin. I had been initially diagnosed with diverticulitis and treated with flagyl and cipro . I just got worse 12 to 14 bowel movements a day. I lost 22 pounds in2 months. I was later diagnosed with cdiff and treated with vancomycin. I start to get better then a relapse. I guess my question is has anyone gotten better without relapse on vancomycin. How long did it take. I am losing weight everyday and am still on vancomycin and probiotics This is a life changing illness. @

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Replies to "@I am also in treatment for cdiff due to clindamycin. I had been initially diagnosed with..."

Please see my other posts about this. It is not just taking antibiotics but also preventing relapses through eating proper diet post antibiotics that does not produce inflammation or allows the bad bacteria to return. I took four rounds of antibiotics and it was not until I changed my diet that I stopped relapsing. Can’t emphasize this enough. Since I changed my diet, I have gained seven of the twenty pounds I lost in three months and (knock on wood) have not experienced diarrhea in twenty two days. I could see improvement within a week of starting to work with a nutritionist. I was clueless and so was my GI doctor.

I am on my last round of vancomycin. I had 3 rounds of Flagyl. I keep losing weight too. I’m down to 85. I was told to get a nutritionist to help with a correct died. Also a shake called Elecare. I had at least 30-40 BM’ in one night.
Gut health on here told me that lots of the food we have been eating for Cdiff are bad for us. I am desperate to get well. I’ll try 'anything. Also some suggested a probiotic called Flostar (spelling ).

@losthope I certainly know what you're going through. I too took Clindamycin in April for a sinus infection. Two weeks later, I was diagnosed with Cdiff. I did 10 days of Flagyl. Five days after finishing the drug, Cdiff returned. I then did 10 days of Vancomycin. Again, within a week of finishing Vanco, Cdiff returned. I then did the Vanco pulse and taper for 5 weeks. I felt great for 3 weeks after finishing that round of Vanco. Then my 4th bout of Cdiff hit. It was the hardest and I lost 10 pounds in two weeks. My first stool sample came back negative so I had to wait another five days before we did another sample which was positive for Cdiff. Having FOUR bouts of this, I knew I had Cdiff even when the sample was negative. I then took the expensive med Dificid (fidaximycin). 20 pills for 10 days and the cost was almost $5,000. My copay was almost $1,000. Thankfully, there was a fund that paid part of my copay. I finished the Dificid on October 26th. So far, so good. And I knock on wood every time I say that. If Cdiff returns for a 5th time, I'll do the fecal transplant. I've looked in to Open Biome and doing the capsule form. The cost is $635. I haven't discussed this with my gastroenterologist and hope he would approve. I just pray that I'm on my way to good health. Are you doing the pulse and taper with vancomycin?

I was sick for 8 months also due to Clindamycin. I was treated with vancomycin for 4 months or longer. I tried every probiotic there is. I was given the name of one on this group called florastor and it was a game changer for me. My cdiff got better which may have also have been the vanco for so long but I take it and I (thank God) have been ok. I can’t eat ground meat or corn or any ruffage but it’s ok as long as I never go through that again. I wish you the best❤️Hope this helps.