Thank you saucy - yes, I'm aware that fructose is more than HFCS, I think I said threw that out meaning that and all fructose - anyway, the point that I was getting at was that you can perhaps 'self diagnose' this problem by doing an elimination and seeing how your body reacts, without necessarily having any 'formal' testing? Do I have that right? Or did you also have some kind of test... or is there some kind of test? I apologize if I'm repeating info already put out, but I am new here, and haven't had time to go back and read all the threads (although I am working on it).
It is amazing that you felt better so quickly! Can't remember if I wrote it on this thread, but I was also very disappointed with the Mayo dietician I saw just this past Tuesday, so they haven't updated at all still! I thought as part of this "#1 GI center, I was going to be seeing one who specialized in GI issues. The one I saw wasn't even familiar with the FODMAP diet (and one of my diagnoses is SIBO). She told me to eat 3x a day, gain wait and eat lots of fruits and vegetables, etc. Typical stuff you'd read anywhere. I am planning on letting them know they really should get some dedicated GI dieticians if they want to advertise a "comprehensive, treating the whole patient program" ( in a nice way.
It seems one really has to basically manage their problem/s themselves. I think I had high hopes it would be different at a major center, but seems not. I'll look back on your posts for the books, etc. and appreciate your information. I know everyone is different, but I've learned a lot more from patients on this journey. I'm curious about some of these intolerances b/c there seems to be a relationship between them and people with SIBO.
I really want to take as few meds as possible, as in my experience and from reading other people's stories, they can sometimes cause more problems.
This will certainly be a challenge for me, as all love all my sweets. Although I've been sick for 11 years.
One more question. My problems started after a gall bladder surgery, prior to that, I had no problems, so no intolerance, at least that I was aware of. Is it possible for this to develop later in life? I have a feeling my doctor will poo-poo this problem and say that 'it is something genetic you would have had problems with your whole life". He's young and very much "by the book". 🙂
I was tested and it was negative. Also went to Mayo nutritionist, they are old school and didn't have a clue about diet for SIBO or Fm. Just gave me handout for FODMAP. Also asked about items on the list that raise my blood sugar (when I get off my diet my A1c goes up). She gave me the Mayo diet which was all carbs!! You have to do all the research yourself like I said before doctors only know how to administer drugs. Your SIBO is probably caused by the intolerances in your diet. Once you get the bad bacteria in you system it wrecks havac. I've been studying nutrition for the last several years in hopes to get my license and help people get through this. I mentioned the books that have helped me and the KETO diet pretty much eliminates all the foods I can't eat. They love to tell us to eat fruits its good for us but it really isn't, it's sugar no matter how you cut it. You can take some supplements and one that has really helped me is Collagen. I put 2 scopes in my coffee in the morning. Also great for your skin and hair!! This is a great sight to share ideas. Possibly after your gall bladder surgery you were given antibiotics in your IV, that can cause all kinds of digestive issues. Just keep searching, you will find all the answers!