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@hydrang3a

To@marilynk….I started Arikayce on Nov 12 and have been on the Big 3 for six months. I’ve had a sore throat and have had emotional ups and downs. I too am very concerned about the serious side effects. Being on any kind of medication for a long period of time is tough on us….but so is this disease. I am vigilant following all the instructions and getting periodic eye and ear and blood check ups. The troubling thing I find is how little doctors know about this drug….and their lack of experience with patients taking it. Still I plan to continue with it unless side effects become overwhelming. Id like to hear from everyone taking Arikayce…we can be a great help to each other!

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Replies to "To@marilynk....I started Arikayce on Nov 12 and have been on the Big 3 for six months...."

@hydrang3a and @marilynk I have a question for you both. Just how infected are you that you need to be on the Big 3?