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Ependymoma/subependymoma of the 4th ventricle
Brain Tumor | Last Active: Apr 5 10:42am | Replies (61)Comment receiving replies
Yes, it was benign. It was almost a grade II and the radiologist said she would not consider doing radiology for now. My cerebellum is still causing balance problems. My eyes are tracking in some areas, however, my right eye constantly jumps and my left a little. I feel like they are trying to focus and due to my cerebellum, it is a constant moving view. It has to be rare, I see several kids and no adults, until you. I have been to ophiologist, however, have yet to see the neurological one. I have tried to find some information on recovery and its all really vague. I'm sure the rarity is part to blame.
Replies to "Yes, it was benign. It was almost a grade II and the radiologist said she would..."
Have you tried patching one eye to drive...? I have done that but it does take awhile to adjust...I found I could patch and adjust but then went to prisms and adjust to that...although they didnt work if that makes sense
..I know it's not good to change the lens often but the eyes to adjust in time...
Me again !! I tried to find answers for months but gave up...I think it's about patience...as I said my eyes are not flickering as much now...go at your own pace..you are very very lucky it was found before cancer
I wanted to cut and paste you part of my neurosurgeons report that I hot today but it was a PDF.... he quoted a recent USA study where around 78 percent of patients with a removed or de bulked 4th ventricle tumour suffered significant neurological damage too... the eyes and balsnce...
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Yes I know all about jumping eyes but mine have improved