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Ependymoma/subependymoma of the 4th ventricle

Brain Tumor | Last Active: Apr 5 10:42am | Replies (61)

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@beckyziegler

Hi! Thanks for letting me know about the 15 months. I am trying to hang in there, some days easier than others. I would like to find anyone who has had this procedure done and how long it took them to reach each milestone. Being so far from my surgeon keeps me kind of cut off from others. When I go back in April that is one thing I plan on asking him. There are so many different kinds its hard to find an ependymoma in the fourth ventricle. I'm so glad you are doing better. I believe yours will also improve. Unfortunately one thing everyone agrees upon is that it is slow.

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Replies to "Hi! Thanks for letting me know about the 15 months. I am trying to hang in..."

Hi...it is a rare tumour found mostly in children.i understand that only a few adults in nz have had this. To date you are the only one I've communicated with...what problems do you have with the eyes? Are they aligned ? And do you know what stage the tumour was. I'm guessing a benign stage ?