Connect
← Return to Ependymoma/subependymoma of the 4th ventricle
Discussion
Ependymoma/subependymoma of the 4th ventricle
Brain Tumor | Last Active: Apr 5 10:42am | Replies (61)Comment receiving replies
@jcorcoran At the recommendations of the doctors at Mayo we are currently just monitoring my tumor! There was very little to no change from my first MRI. I’m not completely sure I’m 100% comfortable with that but my husband doesn’t agree with taking it out either when the doctors feel there is no harm in waiting. Because of lack of growth & how my tumor presents itself on MRI’s they are leaning more towards it being a subependymoma but they still really won’t know until it’s taken out which is the scary part! Hopefully they are correct in their assumption that it’s a sub and surgery is not immediately needed! Who are you seeing there? My team is Carabenciov (neurologist) and Parney (neurosurgeon). The first time I also saw LaChance (neuro-oncologist). I would like to meet with him again as he’s associated with the CERN foundation.
Replies to "@jcorcoran At the recommendations of the doctors at Mayo we are currently just monitoring my tumor!..."
Connect
I have an appointment with Dr Lachance (neurologist) and Dr Meyer (neurosurgeon). Dr Meyer actually did brain surgery on my wife (now ex) 4 years ago. She had a cyst in the left side of her brain a little bigger than a tennis ball. They were amazed she was functioning normally for so long and was just starting to have motor skills issues with her rt leg. I did a lot of research and asked for Dr Meyer specifically for her. She went to the U of M first and they gave us 3 options, none of which sounded good at all. Dr Meyer told us something totally different and was extremely confident that she would be cured and in the end she was. I happened to get him just by the luck of the drawer unless unbeknownst to me they gave me him because of the prior association. I have done a lot of reading and I hope my doctors recommend waiting. My only issue is an earache which has been bearable and I am not sure I want to risk worse problems than I already have. Did you read the post by beckyziegler @beckyziegler. She had 4th ventricle surgery 10 months ago and you may want to read her post. I wish you (and everyone else who share this challenge) all the best.