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Ependymoma/subependymoma of the 4th ventricle

Brain Tumor | Last Active: Apr 5 10:42am | Replies (61)

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Hello. I am 41 and was diagnosed with a subependymoma in the 4th ventrical in 2016. I went to an ENT for vertigo, which I was getting about once a year to year and a half and I mostly had the dizziness at night or in the morning and it would last for about 2-3 days. It first came up in pregnancy with my first child. By the time my ENT appointment came, 6 months later and while not currently having symptoms, he ordered me an MRI and referred me to a Neurosurgeon. They told me 1cm X 1cm X 1cm. I had quarterly MRIs with not growth and no obstructions. I had some other strange neuro issues and it was decided between my team that it was all unconnected. Just this past week, my vertigo came up and I was able to get into my ENTs office with a same day appoint,ent and they ran all the same tests. It was concluded that the tests showed my eye movement and dizziness was connected to my brain stem. I forgot to mention that I just did a full year without growth as of Nov. I had really gotten comfortable with letting it sit and not growing and not having any connected side effects. Currently, the vertigo is on day 5, which is the longest I have ever had it. I did get a second opinion from a dizzy specialist and he ran further balance tests and he recommended me to a different neurosurgeon. At this point, I am really hoping this dizziness is not the new normal and I can go back to feeling normal. My original Neurosurgeon left his practice due to a personal medical issue, and I am currently in this in between phase, but while symptoms are flared up. I am in Pittsburgh, PA. Thank you for sharing your stories. It is really nice to know I am not alone.

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Replies to "Hello. I am 41 and was diagnosed with a subependymoma in the 4th ventrical in 2016...."

Ditto... my doctor spent two years Messing about but eventually sent me also to a ENT specialist because of my vertigo. He wrong,y diagnosed migraine associated dysequlibrum. Gave me medications. It’s was on,y after I felt so terrible at work that I rang his surgery to say that none of the medication was helping. He then reffered me for a MRI and the tumour was found.