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Ependymoma/subependymoma of the 4th ventricle

Brain Tumor | Last Active: Apr 5 10:42am | Replies (61)

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Hello, I am 47 years old, a female and 8 months out from fourth ventricle surgery to remove an Ependymoma. I wasn't really given a choice. It was about 2cm cube. I had one incident of numb face and forgetfulness that lasted less than two minutes. I thought it was my sinuses. I had been struggling with vertigo for about a year. I am better, however not right. I have vertigo all the time. I see double and one eye jumps. I am grateful to be alive, however I did not have a clue what was going to happen. Cognitive level is the same, physical is a struggle. I wish I could be more helpful, I found this desperately searching for answers as to why recovery seems so slow. I find it is normal, which sucks. Sorry

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Replies to "Hello, I am 47 years old, a female and 8 months out from fourth ventricle surgery..."

Hi... I’m a just turned sixty female from New Zealand and suffered what you did. Stage two tumour in the forth ventricular. Surgery has left some fairly major side effect s. I have complex sixth nerve palsy, nastagmus visual ossilation. My eye sight is a major problem and I’ve had two subsequent eye operation s to help alignment. They now look better but there is no or little function al improvement. I also have balance problems and it’s taken me a year to walk. However, I’m falling sideways and holding onto furniture. I was lead to believe things would improve here but they have not. My life has turned up side down. I cannot drive or earn a living anymore. My eyes and body tires easily.