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IgA Nephropathy - Managing flare ups

Kidney & Bladder | Last Active: Nov 28, 2018 | Replies (4)
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@kamama94

@eileen14 While dialysis temporarily can bring down Cr, I've been told that 15 GFR usually is when dialysis is ordered. This is NOT medical advice, just information: I've also been told that blood pressure-lowering meds and good hydration can help lower Cr. I hope you can consult with your physician(s) or someone on your care team. Berger's disease currently has no cure but can be managed.

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eileen14 | @eileen14 | Nov 28, 2018

My doctor ordered bloodwork and an urinalysis yesterday. Will get results tomorrow. Seven years since diagnosis. When I was first admitted to hospital the doctor surmised that I would need a transplant within 6 months. That is how bad things were back then! Six IV treatments of Cytoxin, high doses of prednisone since the start, 3 types of blood pressure meds twice daily, and numerous other pills. My quality of life is “no quality”! That is what irks me the most. Feeling exhausted and beat up!
Yes, IgA is incurable. Sad fact! I just hope to someday be the person I was before this illness!
Are you living with Berger’s disease also? I hope you are feeling well, thanks for your time!

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