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jeanne5009 (@jeanne5009)

Liver disease itching

Transplants | Last Active: Dec 26, 2020 | Replies (95)

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@rosemarya

@caro72
Carol, Welcome to Mayo Clinic Connect. I am happy that you have found this group where patients are sharing their own experiences. I assure you that you are not alone in your opinion of "not being happy" about your diagnosis. When I received my own diagnosis, I was confused and frightened, and felt helpless. Fortunately, I had a terrific doctor who referred me to a gastroenterologist (GI) nearby who monitored my condition. He monitored me for 8 years until he referred me to transplant department. Are you within driving distance of a larger medical center where you can get in to see a GI?
I was just over 50 when I got my diagnosis. I did not have NASH, but I am aware that all of us with a liver disease diagnosis share many common symptoms.
When I developed itching, I found some relief by using the lotion Sarna. Another temporary relief ws provided by warm bath using one of the Aveeno products for that purpose. That was 10 years ago, I don't know what is on the market today. I was also approved to take minimal doses of antihistimines.

I want to share the following information that has been collected for NASH Patients: Blog Round-Up – You will be able to participate in any of the conversation there, too.
https://connect.mayoclinic.org/page/transplant/newsfeed/nash-patients-blog-round-up/
I do not have diabetes, and I have no experience to share about that.
How did you learn that you had NASH? If you are comfortable to share, I would be interested in what kind of a study you will be involved in. Is there a GI involved with that study?
I am looking forward to hearing from you.

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Replies to "@caro72 Carol, Welcome to Mayo Clinic Connect. I am happy that you have found this group..."

Yes I do have a gastroenterologist but he is not really paying much attention to my symptoms and to how I feel with this sickness he can’t even tell me what diet I should be on, tells me I don’t have pain in my rt upper quadrant and such I am not at the point for liver transplant for now since it’s compensated Nash for now I am not a last minute person and I am a nurse so it’s hard for me since I know somewhat what this is …. I am about 4 hours from a transplant centre and hopefully this research will help it’s Obeticholic acid double blinded study it’s for 2 years first year some will be on the med and some on a placebo they will collect data from blood work for a year then everyone in the study will take the med for the second year in our area they said I was the youngest on the trial …