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Liver disease itching: What helps?

Transplants | Last Active: Nov 22, 2023 | Replies (155)
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@bikermike

Hi Jeanne5009, I am a post transplant patient (June 2016) and have experienced the uncontrollable itch. I had it pre transplant and still get post transplant as I have a bile duct issue. I wanted to let you know the ursodiol they speak of is great.... However recently they increased my does significantly which caused the uncontrollable itching to come back. I went from 250mg twice a day to 600mg twice a day. So with right dose it works well. And yes is expensive. It is a tier 4 for medications. Prograff and cellcept ( anti rejection meds) and insulin are tier 3 if that tells you how powerful it is. Hang in there, I know how miserable it is!

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Replies to "Hi Jeanne5009, I am a post transplant patient (June 2016) and have experienced the uncontrollable itch...."
jeanne5009 | @jeanne5009 | Mar 11, 2019

@bikermike
Thanks..its gone for now and I have no idea which one of the meds did it. I think its the auto immune issue that is triggering it so now Im searching for a way to keep it from coming back! Miserable stuff.
This is Bike Week in Daytona....are you going?? Lol

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Rosemary, Volunteer Mentor | @rosemarya | Mar 11, 2019

@bikermike, Welcome to Mayo Clinic Connect. I am happy that you have joined the transplant discussion group. I had PSC which affects the bile ducts, so I am well familiar with URSO because I took it pretransplant. I had a simultaneous liver and kidney transplant in 2009.
I am so sorry about the itching. I did not know that URSO helped with that. Is your bile duct issue something that has developed since transplantation? Do you doctors say if this is a temporary situation?

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