Connect
← Return to Liver disease itching: What helps?
Discussion
Liver disease itching: What helps?
Transplants | Last Active: Oct 4 1:28pm | Replies (157)Comment receiving replies
@rosemarya
Yep the waiting and watching phase for the next delightful symptom. The studying phase..the too little sponge phase. I look remarkably well...
.so they tell me. I was evaluated at Mayo Jax in June as a"good candidate" just "too early"
Meld is 8. I have a long way to go I guess. To me...that means that everything I have to endure til my time..will be passed on for others to study and absorb. I'm sure you have been there done that! Hoping my sarcastic sense of humor holds out.
Since Mayo is out of network on my plan, I use Tampa General for my go to hepatologist. When it's time I hope to go to Mayo.
Replies to "@rosemarya Yep the waiting and watching phase for the next delightful symptom. The studying phase..the too..."
Connect
Jeanne, Thanks for refreshing my memory.
For a long time, I looked well, too. And when I told friends that I had liver disease, they 'knew' that I was misdiagnosed. Later, when I did start to look and act unwell, those same people asked me why I hadn't told them about it. Sigh! And that is not mentioning all of the cures that they knew about, when they could not even pronounce my disease.
On the bright side for you - Remember that you have the present time, with low MELD and symptoms, to focus on taking care of yourself. Healthy eating and maintaining a level of activity and fitness will be to your advantage.
It is a good feeling when we know that our crazy medical path will benefit others sometime.
I hope your tests will get the information that the docs are looking for. Keep in touch.