← Return to Has anyone experienced internal vibrations?

Discussion
Comment receiving replies
@moondusk

Hello, I am new to the group. I really appreciate reading the various stories about the development of the internal tremors and what works and doesn’t work. So, thank you for sharing. My story is that I am 69 years old. My internal tremors began four years ago. They were accompanied by tinnitus. The tinnitus sound was similar to holding a conch shell to my ear and hearing that type of noise. So, it wasn’t terribly unpleasant but was annoying. Initially my internal tremors were mild. I had just worked hard on getting my house ready to put on the real estate market. I thought I was just overly tired, etc. Four years later, they have not only continued but progressed. I have them from my head to my toes. They occur all day and everyday. They are not noticeable to others. My muscles on the top of my thighs frequently ache. I can feel a hard lump in my leg. I have also frequently had muscle cramps but mostly on my left leg. Interestingly, all my significant medical conditions occur on my left side (DVT, CVST, Dural Arteriovenous Fistual, pulmonary embolism, lung nodules). My blood tests have come back normal. My EMG was normal. My movement disorder doctor stated there was nothing else they could do and did not have a plan to assist me other than to say if I develop new symptoms to give her a call. One of the neurologists that I saw yelled at me and stated that because I was a mental health therapist I should be able to figure out what the stressor is and manage it. He was sure it was anxiety. There is nothing I find to be more of an indicator of incompetence than when a doctor, therapist, etc, takes one symptoms and leaps to a conclusion. I confidently told him my internal tremors were not caused by stress/anxiety. He stated I didn’t need to see him again but to call him if my symptoms change. I told him I concurred about not seeing him again but would not be calling him if my symptoms changed!

Jump to this post


Replies to "Hello, I am new to the group. I really appreciate reading the various stories about the..."

hi all and @moondusk Teleconference with neurologist, had peripheral neuropathy since 2106 and some other things and started tremors probably six months ago.. I thought it could be dental numbing...eg lidocaine, epiniphrine etc. but he doesnt think those drugs have lasting effect... but said Essential Tremor. Although he had been sent copy of my lastest blood tests, I was the one who mentioned very low on Vit D and he said yes, and a bit low on B12. Thankful the tremours arenot painful but have other pain causing issues, so adding it all up, its a bit hard to separate and treat... I have had anxiety and stress on and off for many yerars and I too edo not think these tremors are caused by stress etc. I was not surprised he didnt suggest a cure or how to cope... but lucky to even speak wtih him with covid going on. .. ugh

I feel so bad for you that you were scolded. It is hard enough to cope with the symptoms, adding blame doesn’t help.
I am 75. I have Crohns as well as P.OT.S. Sometimes it is hard to know what is influencing what.
This discussion on Vitamins is very interesting. Because I have had a portion of my small intestine removed due to Crohns, the portion responsible for absorption of nutrients, I am on quite a few supplements. Doctor prescribed Vitamin D and had to increase the dosage in order to make up for insufficiency. I will see at next visit whether the increase did the job. Perhaps that is the cause of my inner tremors. Hopefully it will be that simple, nothing else is😊.
The tremors I feel are similar to the way you feel when you feel like your heart is racing, but your pulse rate is not elevated. It is a interior feeling with no external symptoms. It woke me up. It’s located in the chest cavity mostly, but extends out a bit. It is hard to explain. But it’s like a quivering. It’s a new symptom. Don’t know if it will persist or increase.
Has anyone else had this experience?