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Has anyone experienced internal vibrations?
Brain & Nervous System | Last Active: 6 days ago | Replies (914)Comment receiving replies
Hi There, I've posted somewhere above and just seen your message. Have had internal Vibrations for over 7 months now and they have started to subside somewhat. My story > 60 years old. Exercise daily but a lil overweight. Non smoker on no meds. My personal journey included a lot of research. The vibrations can be from Lyme disease, Parkinson's, Essential Tremors, MS, heart blockages, and my personal favorite is MENOPAUSE - I really think this is my problem along with stress mixed in there too. MY suggestion is to go through every symptom you have and write it down and start researching. There are sooooo many things that can cause Internal Vibrations- Even tumors, vitamin deficiency, diabetes amongst the ton. When I went to my doctor and told him ....he actually laughed and told me that maybe i was nuts......Having IV has been absolutely terrifying! Mine Started once in a while ....thought a truck drove down the road and my bed /house shook which made if feel like my whole body was vibrating, then they happened all the time even sometimes during the day. Most recent down mostly in my legs. FOR ME- I'm gonna try to be as healthy as i can and do my due diligence to get all the regular screenings done and eliminate the most abviouse and most dangerous things it could be and move on with my life! I"m so grateful for everyone that has shared their personal stories because it helps tremendously....and we know that we are NOT ALONE!! f I can be any more of assistance feel free to reach out. Best of Luck! NOTE: I have been using CBD (no THC) From Medterra and Montel Williams) to help fall asleep.
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It’s important to add BFS/CBFS to the conditions that cause the vibrations, since it is far less detrimental than some of the ones you listed. While those that you list do/can cause fasciculating, BFS is more likely than most.
For those new here that don’t feel like searching my history, the elevator speech of what I’m going through is: started internally vibrating when falling asleep in Jan 2020 after feeling very ill for 2 weeks. After two months or so, the sleep-only vibrations started happening while awake and attacking my calves the worst. After that the sleeping vibrations minimized and moved almost full time to vibrations and muscle twitches all over while awake. Cramping then began and walking was not easy.
In those next months, I saw about 20 doctors including two of the country’s strongest Neuro teams (Jefferson in Philly and Hopkins in Baltimore) and had every possible test except COVID interrupted the planned skin punch biopsy to look for SFN, and a lumbar puncture to look for rare diseases. Ended up receiving three diagnoses of BFS.
Since then, the symptoms come and go in intensity and presentation, but the cramping is much more mild, and I am able to go about life for the most part. I am back to being able to walk 3-7 miles a day to golf, or go ski, etc. It’s certainly not as easy as it was before thus, but it doesn’t stop me. Generally, the worst vibrating and fasciculations now occur when I’m at rest (but awake), particularly after exercise. Basically 75% of the time, some muscle somewhere on my body is fasciculating an vibrating. Just while writing that sentence it hit my right scapula and my left thigh.
I’ve been on 3x300mg gabapentin for nearly year to calm the erroneous signals after trying and failing Cymbalta and some other stronger Rx’s with nasty side effects. Not sure how much the neurontin helps but no side effects for me at all, so I have no plans to stop.
It will always stick in my mind, what the Hopkins neuro told me. She said “we know so very little about BFS that it could easily be another 20 years before we really understand it. All we know is sort of how to try and deal with it through some Rx’s and appropriate exercise.” This is one of the reasons I tell everyone doctor I meet my whole story in hopes that it sparks something to happen sooner to help those of us suffering. I’d gladly toss myself into some research pool if one ever became available.