Has anyone experienced internal vibrations?

Not being facetious at all, but what was a huge help to me, mentally, was realizing that I’m not dying from it and it isn’t taking my mobility degeneratively. Is it highly disturbing and disruptive and trying on the patience? Absolutely, but, at the end of the day it’s nothing that is genuinely nasty in most cases. Also there is hope that it will subside, lessen, or at least wax and wane (like in my case).

The insomnia is tough because you know it’s going to get worse when you lay down and your brain slows, so you don’t want to do it... that’s when it rears up, just as you enter sleep. Still, even though I am where I am mentally now, I don’t sleep until I’m basically going to keel over. Combination of my gabapentin and knowing that, at rest the vibrations amplify. It’s also counter productive since there is a solid informal link between adequate rest and lessening vibrations and fasciculations.

Just as a quick recap for those who don’t know or remember my prior posts, I’ve just passed the 1 year mark of a monthlong mystery illness that walloped me, followed by severe internal vibrations including vocal cords, neck, throat, head and chest in addition to the more common leg and arm areas. Had every test under the sun and all were fine, which led to two independent neuro provided BFS / CBFS diagnoses.

One year ago I was bed ridden, crying non stop, scared out of my mind, 2-3 doctors per week, and felt like I was dying of something. Even when I tried to get around my legs would cramp and shake and give out. My nights were a hell of vibrating and waking up screaming with my voice fluttering from the vocal cords fasciculating. My thighs would wake up my wife from vibrating. I tried to walk outside and would collapse from the thigh and leg pain.

Now, my legs buzz often, most of the time one muscle somewhere is going nuts (my left foot arch is bumping and popping as I type this), but my mind and body have improved enough that I got to the point where I’d walk 7 miles golfing 2-3 times a week all fall, and now I’ve been skiing 3 times this winter.

Hang in there. Follow up with your medical team and get any testing they suggest, which will likely put your mind more at ease and/or help you if something simple can be done like a vitamin or hormonal correction.

I’ve been having internal vibrations for three months now, I get them especially when my body is at rest, I’ve been having panick attacks too. I did some tests and my thyroid hormones were high but they’re now better but I still have the vibrations and insomnia. I’ve done ecg and seven tests but they were all fine . I don’t know what to do

Hi thanks for the reply. I forgot to add that i was put on Carbimazole 15mg and propanolol 80mg for a month which brought the thyroid levels to normal. Currently, the endocrinologist asked me to take Carbimazole 5mg every other day and continue with propanolol 80mg but right now insomnia is at its peak, I just can’t fall asleep no matter what I do and the doctor has refused to give me sleeping pills, he thinks it it psychological which is not because I don’t have anxiety anymore. I still experience the tremors especially when my body is at rest and my toes move on their own. Please help me with a drug that will make me sleep

@rahmah, Sorry to hear that your doctor doesn't seem to be offering you any help for the insomnia. There are some natural ways to reduce or help with the insomnia that you might want to try just to see if they might offer some relief from the insomnia.

- 14 Natural Remedies to Beat Insomnia: https://www.verywellhealth.com/natural-ways-to-help-you-sleep-88230

You might find other suggestions by reading through the following discussions and posting any questions you might have.
- Please help with sleep problems: https://connect.mayoclinic.org/discussion/0616/
- Insomnia. Nothing seems to help.: https://connect.mayoclinic.org/discussion/josephene-i-am-having-terrible-insomnia-as-well-nothing-seems-to-help/

If it were me, I might try and discuss your insomnia more with your doctor to see if they have some suggestions or get a second opinion from another doctor. Good sleep is really important which I'm sure you already know.

Not being facetious at all, but what was a huge help to me, mentally, was realizing that I’m not dying from it and it isn’t taking my mobility degeneratively. Is it highly disturbing and disruptive and trying on the patience? Absolutely, but, at the end of the day it’s nothing that is genuinely nasty in most cases. Also there is hope that it will subside, lessen, or at least wax and wane (like in my case).

The insomnia is tough because you know it’s going to get worse when you lay down and your brain slows, so you don’t want to do it... that’s when it rears up, just as you enter sleep. Still, even though I am where I am mentally now, I don’t sleep until I’m basically going to keel over. Combination of my gabapentin and knowing that, at rest the vibrations amplify. It’s also counter productive since there is a solid informal link between adequate rest and lessening vibrations and fasciculations.

Just as a quick recap for those who don’t know or remember my prior posts, I’ve just passed the 1 year mark of a monthlong mystery illness that walloped me, followed by severe internal vibrations including vocal cords, neck, throat, head and chest in addition to the more common leg and arm areas. Had every test under the sun and all were fine, which led to two independent neuro provided BFS / CBFS diagnoses.

One year ago I was bed ridden, crying non stop, scared out of my mind, 2-3 doctors per week, and felt like I was dying of something. Even when I tried to get around my legs would cramp and shake and give out. My nights were a hell of vibrating and waking up screaming with my voice fluttering from the vocal cords fasciculating. My thighs would wake up my wife from vibrating. I tried to walk outside and would collapse from the thigh and leg pain.

Now, my legs buzz often, most of the time one muscle somewhere is going nuts (my left foot arch is bumping and popping as I type this), but my mind and body have improved enough that I got to the point where I’d walk 7 miles golfing 2-3 times a week all fall, and now I’ve been skiing 3 times this winter.

Hang in there. Follow up with your medical team and get any testing they suggest, which will likely put your mind more at ease and/or help you if something simple can be done like a vitamin or hormonal correction.

This is an interesting discussion and one I can relate to. I've experienced these internal tremors or internal vibrations on two separate occasions in my life. Once two years ago that lasted for about a month or so and now currently where they've been lasting for the last couple of weeks. Both of them seem to have been triggered by a family health scare so I believe they're brought on by stress/anxiety in the sub conscious mind. I've been waking up almost at the exact same time of night (3:30 a.m.) and when I try to go back to sleep my upper body 'vibrates' inside. Oddly, if I open my eyes and become more awake/alert, they instantly disappear (like snap of the finger disappear). But as soon as I close my eyes and start to relax/fall asleep they start again. Heart rate is perfectly normal, BP is normal (I have an Omron BP machine at the floor next to my bed). I feel like it's sub conscious because I don't go to bed actively thinking about anything negative, I don't feel anxious or stressed when I go to bed. But the fact that it seemed to have again been triggered by a stressful family health scare leads me to believe it's somehow rooted in my sub conscious. The thing that stinks about that is I don't know how to 'beat it.' I've tried Melatonin to sleep better which hasn't worked now 5 days in. I even tried to take Nyquil to try to 'knock myself out' and sleep deeper and that didn't work. I've tried some teas for stress/anxiety, some mood boosting supplements too. I've also tried brief meditation, stretching, and ensuring I get enough fresh air. Thus far, it's been a whole lot of nothing. Next up is Magnesium Glycinate to see if that helps. I'm currently not overly concerned (more annoyed) since they're not accompanied by any other symptom and literally disappear when I open my eyes. I often wonder if it has to do with hypnagogia and sleep states being interrupted by sub conscious anxiety. Curious if anyone else has any other thoughts/ideas or experiences like mine. It's just very weird to me that it only happens at night, only around 3:30 a.m. and disappears instantly when I open my eyes and wake up more completely, yet returns then when I try to fall back asleep.