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Has anyone experienced internal vibrations?

Brain & Nervous System | Last Active: 5 days ago | Replies (914)

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@novajeff

Thanks. Definitely not narcolepsy in my case, but it fits the narrative of an extreme stress event on the body being at the root of kicking-off BFS for someone.

While I’m here, I’ll post a little update. In the past month or so, I have continued to improve overall. Definitely periods of regression where symptoms like the Globus, tinnitus, thigh pain and fatigue, and first and foremost the calf vibrating and fasciculations happen. But, as a whole, it’s improved. I’ve been doing a lot of golf lately
I do not have the leg strength back to walk 18, but still, taking a cart results in 3+ miles of walking, plus the exercise of all the swings. I’ve done well with that and only had my thighs cause me to give up once when the pain made a good swing impossible. Other than that, my legs are just more tired than they should be afterwards and the next day. I chalk it up to fatigue and damage caused by the BFS tremors and vibrations. Hoping over time that my can build back that strength, but I have a feeling it will not get back to 100% while I still have symptoms. Also related, running is not easy still, at the point. Even a short jog is painful to the legs.

Hope everyone is well and finding some way to cope and improve.

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Replies to "Thanks. Definitely not narcolepsy in my case, but it fits the narrative of an extreme stress..."

i was readings all the postings in this page, i like to tell my symptoms that i am experiencing in the last 3 or 4 months, it started with my left leg, pins and needles, burning, itchy not anymore, also my left knee is swollen had x-ray done nothing wrong but i am being referred to a specialist on Sunday, all these symptoms have travelled to the right leg, now i also get when i wake up first thing in the morning i start sweating cold and my feet are so cold , i am waiting for an appointment with the neurologist which it's taking forever, i was just wondering if anyone else has/had experienced any of these symptoms as mine, ty so much and hoping for a reply