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Has anyone experienced internal vibrations?

Brain & Nervous System | Last Active: 5 days ago | Replies (914)

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@michelles123

Yes, I have internal vibrations throughout the day. The Drs still can’t figure it out. Very frustrating.

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Replies to "Yes, I have internal vibrations throughout the day. The Drs still can’t figure it out. Very..."

@michelles123, Here is some more information from Medical News Today on internal vibrations that may sound familiar to your symptoms -- Causes and treatment for internal vibrations: https://www.medicalnewstoday.com/articles/322217

Are you still being treated for Hemifacial Spasms by your neurologist?

Have you researched benign fasciculation syndrome? Check out the symptoms for that, and possibly you may align with them, like I did.
After having every test under the sun, and everything coming back “normal”, I finally received three separate neuro diagnoses of BFS with cramping.
Unfortunately, BFS is in its infancy of being understood by the medical community. It will likely be many years before it is better treated or controllable. The “good” news is that BFS isn’t something life threatening, but to call it “benign” is sometimes frustrating given the impact it has on daily life.

Personally, 6 months in now, about half the days I still wake with buzzing in my calves, globus in the throat, and tinnitus. Half the days I am actually pretty good. I am FAR ahead of where I was in February, physically. Oh bad buzzing days, like today, I also get clinical fasciculations in the calves that are distinct “boom, boom, boom” pops of the muscles.

My thigh muscles are the most challenging now. It is my own theory that due to the tremors inside (micro fasciculations), the leg muscles are more tired than they otherwise would be. There have been several days recently where walking long distances becomes difficult because of a feeling of knives in my thighs. Some sort of cramping, I think. These aren’t textbook cramps that lock you up like a Charlie horse or toe cramp. Just painful and over tiredness in use. Thankfully, my calves have cramped much less as of late.

FWIW, my team has decided to treat me with gabapentin (4 months now). Not sure if that is responsible for my improvement, or if it’s more just a time/healing thing, or a combination. I tolerate it quite well so we are not in a position yet to back off of that medication to experiment.

Best of luck.